mit Spina bifida & Hydrocephalus in Oberösterreich.
In dieser Gruppe sind rund 40 Familien, die diese Einrichtung nutzen. Jede Beeinträchtigung hat seine eigene Geschichte und ist zur Person individuell und der Erfahrungsaustausch ist ein wichtiges Mittel. Wir wollen mit vereinter Kraft das Leben der betroffenen Kinder, aber auch der Eltern, soweit es möglich ist verbessern. Durch Zusammenschluss dieser Familien können wir mitunter auch einiges verändern, was für die Zukunft maßgeblich sein kann.
Organisation von Vorträgen durch Fachärzte, etc
Erfahrungsaustausch im Bezug auf Krankheitsbilder
Erfahrungsaustausch im Bezug auf Kliniken und Ärzte
Erfahrungsaustausch im Bezug auf Therapiemethoden, Heilbehelfe, etc
Erfahrungsaustausch im Sozialbereich und finanzielle Unterstützungen
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